NPGS 2021 Agenda
We are delighted to once again host the virtual Neuroblastoma Parent Global Symposium. Following the successes of last year’s event, and valued feedback by the attendees, this year’s programme will look slightly different- with a focus on broader research topics that are open and accessible to all. Each session will include the opportunity to discuss and ask questions to the leading experts in neuroblastoma. Alongside these sessions, specialised conversation rooms offer families who have specific interests the opportunity to come together, network and share their experience, covering topics such as CNS relapse and adults living with neuroblastoma.
Friday 5 November
UPDATES FROM AUSTRALIA
Dr. Murray Norris and Dr. David Ziegler will kick-off NPGS 2021, sharing latest updates and new breakthroughs from the Australian research community, and information on the ZERO Childhood Cancer Program. This session is hosted by NPGS 2021 as part of the Neuroblastoma Australia family conference.
Moderated by Lucy Jones.
Recent Discoveries in Neuroblastoma with Dr. Murray Norris
A Personalised Medicine Approach to HR-neuroblastoma with Dr. David Ziegler
A Q&A will follow each presentation.
WELCOME
Returning this year is symposium host Dr. Daniel Morgenstern, who will introduce this year’s event.
COPING WITH DIAGNOSIS
Covering topics including neuroblastoma basics and an overview of standard treatment, this session will provide a deeper understanding of the neuroblastoma landscape for families who are facing a recent diagnosis.
Moderated by Leona Knox.
Neuroblastoma basics and terminology with Dr. Ramya Ramanujachar
Overview of treatment for high-risk neuroblastoma with Dr. Daniel Morgenstern
Dealing with acute side effects with neuroblastoma nurse practitioner, Jennifer Saggio
Followed by a 45 minute Q&A.
IF TREATMENT DOESN'T GO TO PLAN
Focusing on a common concern in the neuroblastoma community, this session will look at the latest developments in care for relapse and refractory disease, including a parent perspective on the importance of hope
Moderated by Donna Ludwinski.
Overcoming refractory disease with Dr. John Maris
Relapse strategies including a snapshot of current trials with Dr. Pablo Berlanga
Maximising the potential of MIBG therapy with Dr. Kate Matthay
What is Hope? with Lara Cady Weberling
Followed by a 60 minute Q&A.
Saturday 6 November
MAINTENANCE THERAPIES
This session will cover the latest updates on common maintenance therapies including the Bivalent Vaccine study and DFMO study.
Moderated by Helen McCarthy-Tennant.
Vaccine study updates with Dr. Shakeel Modak
DFMO study updates with Dr. Giselle Sholler
Options for relapsed neuroblastoma after achieving a response or stabilisation of disease with Dr. Lucas Moreno
Followed by a 45 minute Q&A.
ADVANCES IN IMMUNOTHERAPY FOR RELAPSE/REFRACTORY
Could immunotherapy be a key to treating cases of relapse or refractory disease? Experts will present the latest developments in ongoing trials and new combination therapy studies that hope to answer this question.
Moderated by Nick Bird.
Chemoimmunotherapy combinations with Dr. Rajen Mody
Exploring the role of anti-CD47 with Dr. Robbie Majzner
Followed by a 30 minute Q&A.
SURVIVORSHIP
Paediatric Nurse and Neuroblastoma survivor Demie Risby will moderate a Q&A session around the hopes and challenges of life after treatment. In addition, Neuroblastoma survivors will be joined by Pat Tallungan to share their experiences.
THE GLOBAL FACES OF NEUROBLASTOMA
Symposium Host Dr. Daniel Morgenstern will close this year’s event, alongside a montage of the children from around the world who we are here to support and champion.